We are Australia’s only charity for people living with hydrocephalus

Formed as a volunteer association in 1997, HSA is the only charity in Australia focused on empowering the Australian hydrocephalus community, enabling inclusion, informed experiences and improved health pathways through connection, advocacy, education and promoting research.

What is hydrocephalus?

Hydrocephalus is a chronic, neurological condition where cerebrospinal fluid (CSF) accumulates and builds up in the brain. Every year in Australasia, approximately 1 in 500 children are born with hydrocephalus and many more adults and children acquire this condition. It’s incurable, but can be treated. The most common treatment is the insertion of a medical device called a shunt, into the brain. Those living with hydrocephalus may require multiple brain surgeries throughout their life.

Approximately 1 in

babies are born with hydrocephalus each year in Australia

A shunt is the

MOST COMMON TO FAIL

medical device

%

Approximately 50% of shunts fail within 2 years of placement

Join our Hydro Warrior Community

The HSA is run entirely by volunteers and receives no government funding. Our activities are entirely dependent on donations and membership fees. By joining the HSA you will be helping to fund our services, but, more importantly you will be joining a community that can provide you with support and access to the latest research and developments.

Access Research

Access to The Shunt Registry statistics & updates.

Get Important Updates

Access quarterly HSA newsletters.

Attend Support Meetings

Receive invitations to quarterly HSA meetings (held in Brisbane, Sydney, Melbourne & Online).

Get Support

Access our Welfare Officers for advice, support and connections.

Meet Fellow Hydro Warriors

Every journey with hydrocephalus is unique, but no one has to face it alone. Together, we are stronger.

How Can You Help?

There are many ways you can support a Hydro Warrior!

Buy Merchandise

Buy one of our Under Pressure Bucket Hats or waterbottles and start a conversation about Hydrocephalus at work, on the playground or in the Supermarket. All proceeds go directly to the HSA. 

Join The HSA

Joining the HSA brings you closer to our community, gives you access to welfare support and keeps you up to date via newsletter on all latest research and developments relating to Hydrocephalus.

Donate To The HSA

Talk to your daycare, school or workplace about donating or donate funds to the HSA individually.

Spread The Word

Visit our Facebook, Instagram and YouTube channels and share facts around Hydrocephalus and life for those with the condition.