Meet Hydro Warriors
Every journey with hydrocephalus is unique, but no one has to face it alone. At the Hydrocephalus Support Association (HSA), we recognise the strength and determination of those living with hydrocephalus — our Hydro Warriors. From managing day-to-day challenges to facing surgeries and hospital stays, these individuals show incredible resilience in the face of a lifelong condition.
Hydrocephalus may be part of their story, but it doesn’t define who they are or what they can achieve. Hydro Warriors are living proof that with the right support, no hurdle is insurmountable. Together, we share their stories to raise awareness, build understanding, and remind everyone in the community — you’re never alone.
Aydan Casey
I was diagnosed with Hydrocephalus in-utero. Which meant that from birth it was "all-systems go". Luckily my mother had her support network, particular my maternal grandmother who would become my...
Mary Smith
Interview of Mary by Wendy Brown on 26 March 2025 This interview was conducted with Mary who was recently diagnosed with hydrocephalus and kindly agreed to share her experiences so far. When were...
Maryann Bownds
I don’t normal put this out there. But with not much information knowing about Hydrocephalus (40- 50 age group) and NO CURE!! I thought it was time say something……. In 2016 at 47 years old, I was...
Minnie Grady
I’m 23 and have just had my 4th shunt revision. My last shunt lasted me 18 years with no complications, and I truly thought maybe I was one of the lucky ones and my shunt was going to last me...
Logan Aboud
WRITTEN BY MOTHER AISHA Logan was diagnosed with a bleed in his head less than two weeks after birth. He was transferred from the hospital to the children’s hospital in Sydney, and the next day he...
Isaiah Vidler
First diagnosed at five months I have battled hydrocephalus through my childhood and adult life. I’ve had seventeen shunt revisions, my first VP Shunt was implanted into my brain when I was two...
Jennifer Ghent
Two years ago I began to experience feeling like I had too many alcoholic drinks all the time. Driving and walking became challenging. I also had an unwavering brain fog and needed to urinate very...
Brian Thomas
This interview was conducted with Brian Thomas who received his first and only shunt approximately two years ago. Brian has kindly shared some of his experiences and challenges since just prior to...
Alex Warren
My name is Alex, and at 33, I was diagnosed with Hydrocephalus on Christmas Eve 2023. In the weeks leading up to Christmas, I began experiencing migraines, brain fog, blurred vision, loss of...
Tyler Ballard
I was born with a severe case of hydrocephalus, mild cerebral palsy, and a brain injury. The VP Shunt prevented any cerebrospinal fluid from entering the ventricles into my brain. Before the...