Meet Hydro Warriors
Every journey with hydrocephalus is unique, but no one has to face it alone. At the Hydrocephalus Support Association (HSA), we recognise the strength and determination of those living with hydrocephalus — our Hydro Warriors. From managing day-to-day challenges to facing surgeries and hospital stays, these individuals show incredible resilience in the face of a lifelong condition.
Hydrocephalus may be part of their story, but it doesn’t define who they are or what they can achieve. Hydro Warriors are living proof that with the right support, no hurdle is insurmountable. Together, we share their stories to raise awareness, build understanding, and remind everyone in the community — you’re never alone.
Noah Heynes
WRITTEN BY MOTHER DANNI Our son, Noah, was diagnosed at 7.5 months old with congenital hydrocephalus due to acqueductal stenosis. From 4-6 months of age his head began growing rapidly compared to...
Addison Rose
JOURNEY AS TOLD BY MOTHER AMANDA Addison was born six weeks prematurely and spent a week in the Neonatal Intensive Care Unit at Nepean Hospital, Penrith. She had to have CPAP Oxygen for the first...
MEET HYDRO WARRIOR – HENRY CSIK
JOURNEY AS TOLD BY MOTHER KERRYN During routine baby checkups at 8 weeks old, Henry’s GP had noticed that his head circumference had rapid growth since his previous checkup. From a short time after...
MEET HYDRO WARRIOR – KAIDEN MOOD
JOURNEY AS TOLD BY MOTHER AMY Kaiden was my first child, I was 17 when I fell pregnant with him. I gave birth to kaiden at 18 and was instantly in love with him. The midwife was doing all of his...