The November 2025 Hydrocephalus Support Conference was a meaningful and memorable milestone for our community. For the first time, the conference was held outside of Sydney, bringing together people from across Australia in a space built on shared understanding, openness, and connection. Throughout the weekend, there was a strong sense of belonging — a reminder of the power of coming together with others who truly understand life with hydrocephalus.
We are pleased to present the following video recordings of all our speakers over the course of the conference.
Hydrocephalus in Children with Dr Alison Wray
Wills, Power of Attorney with Justice Greg Garde
Adult Neuro Nursing with Jane Raftesath
Neurosurgical Survey Results with Kerryn Csik
My Story – Parent of a child with Hydrocephalus with Natalie Precious
Travel Insurance & Hydrocephalus with Erin Garde
My Story – ETV with Helen O’Toole
Hydrocephalus in Adults with Prof. Kate Drummond
Hospital Visits and Advocating for yourself with Erin Garde
My Story – Adult with Hydrocephalus with Alex Warren
President’s Address with Andrew Garde
Normal Pressure Hydrocephalus with Dr Brindha Shivalingam
Kitea Sensor with Prof. Simon Malpas
B Braun Future Technology with Dr Xenia Doorenbosch
The Shunt Registry with Dr Alison Wray and Katrina Smith
The conference program reflected the theme Enabling Inclusion, Informed Experiences, Improved Health Pathways and brought together expert knowledge alongside lived experience. Across two full days, attendees engaged with a wide range of topics including emerging technology, neurosurgical care, Normal Pressure Hydrocephalus (NPH), advocacy, paediatric and adult hydrocephalus, legal planning, and the importance of patient voice.
We were grateful to welcome a diverse and generous group of speakers who shared their expertise, experiences, and insights. Clinical and research perspectives were complemented by deeply personal stories from members of the hydrocephalus community, creating a program that was both informative and deeply human. These shared experiences were among the most powerful moments of the weekend, reinforcing the importance of lived experience in shaping understanding, empathy, and advocacy.
Thank You to Our Speakers and Supporters
We would like to extend our sincere thanks to everyone who contributed to making the Hydrocephalus Support Conference such a meaningful and successful event. Your time, knowledge, openness, and generosity helped create a weekend that was informative, empowering, and deeply connected to lived experience.
Speakers & Presenters
- Dr Xenia Doorenbosch (B. Braun)
- Professor Simon Malpas (Kitea Health)
- Dr Brindha Shivalingam
- Professor Kate Drummond
- Dr Alison Wray
- Erin Garde
- Kerryn Csik
- Jane Raftesath
- The Honourable Justice Greg Garde
- Alex Warren
- Helen O’Toole
- Natalie Precious
We would also like to thank the many volunteers who supported the planning and delivery of the conference. Your behind-the-scenes efforts made a meaningful difference to the experience of everyone who attended.
Conference Sponsors & Supporters
- Coregas
- B. Braun
- Kitea Health
- Medtronic
- Get Real Workwear & Safety
- Promotion Products
- Laundry Lane
Thank you to everyone who attended, presented, volunteered, and supported the Hydrocephalus Support Conference. Being together in a space where experiences are understood without explanation and voices are respected creates a lasting impact. Your involvement continues to strengthen HSA and the community we serve.