Privacy Policy

Effective Date: 1 January 2025

The Hydrocephalus Support Association (HSA) is committed to protecting the privacy of our members, donors, and website users. This Privacy Policy outlines how we manage your personal information in accordance with the Australian Privacy Principles under the Privacy Act 1988 (Cth).

Who We Are

Our websites are https://hydrocephalus.org.au and https://hydrocephalus.org.au, representing the Hydrocephalus Support Association (HSA). This policy applies to both websites and any services provided by HSA.

 

What Personal Information We Collect

We may collect the following types of personal information:

  • Name
  • Date of birth
  • Address
  • Email address
  • Telephone number(s)
  • Payment information
  • Transaction details
  • Usernames for social media accounts
  • Information about your use of our websites, including IP address and browsing history
  • Preferences regarding our services and products

We may also keep on file any survey responses or other information you provide related to hydrocephalus. This helps us better understand the needs of those with the condition and improve the support we provide.

We do not collect sensitive information unless required by law or with your consent.

 

How We Collect Your Personal Information

We collect personal information directly from you when you:

  • Create an account on our website
  • Make a donation or purchase products
  • Subscribe to our mailing lists or newsletters
  • Submit a contact form or inquiry
  • Participate in events, surveys, or competitions
  • Interact with us via social media

We may also collect information automatically when you use our websites through cookies and tracking technologies. For more information, see the Cookies and Tracking Technologies section.

 

Why We Collect Your Personal Information

We collect personal information to:

  • Provide you with our services and products
  • Manage donations and memberships
  • Communicate with you about HSA events, campaigns, and news
  • Improve our websites and services
  • Comply with legal obligations

We will not use your personal information for purposes other than those outlined in this policy without your consent.

 

Marketing Communications

When you provide your details to us, you consent to receiving marketing communications about HSA’s services, events, and campaigns. You can opt out at any time by selecting the “unsubscribe” option in our emails or by contacting news@hydrocephalus.org.au.

Please note that even if you opt out of marketing communications, we may still need to send you essential communications related to your account or transactions.

 

Cookies and Tracking Technologies

Our websites use cookies to improve your browsing experience. Cookies are small files that store information on your device. We use cookies to:

  • Remember your preferences
  • Analyse website traffic
  • Detect and prevent security threats

You can manage your cookie preferences through your browser settings.

 

Sharing Your Personal Information

We may disclose your personal information to trusted third parties who assist us in:

  • Website hosting and maintenance
  • Payment processing
  • Data storage and management
  • Marketing and communications
  • Customer support

We will only share your information with third parties who comply with privacy and security obligations.

 

Security of Your Personal Information

We take reasonable steps to protect your personal information from misuse, interference, and loss, as well as unauthorised access, modification, or disclosure. Security measures include:

  • Secure servers
  • Encryption of sensitive data
  • Regular security audits

In the event of a data breach, we will notify affected individuals and the Office of the Australian Information Commissioner (OAIC) as required under the Notifiable Data Breach Scheme.

 

How Long We Retain Your Personal Information

We retain personal information for as long as necessary to fulfil the purposes outlined in this policy, or as required by law. For example:

  • Comments and metadata are retained indefinitely
  • Account information is retained until the user requests deletion

You can request that we delete your personal information by contacting news@hydrocephalus.org.au.

 

Your Rights

Under the Privacy Act 1988 (Cth), you have the right to:

  • Access the personal information we hold about you
  • Request corrections to inaccurate or incomplete information
  • Request deletion of your personal information

To exercise these rights, please contact news@hydrocephalus.org.au. We will respond to your request within a reasonable timeframe.

 

Third-Party Services and Embedded Content

Our websites may contain links to third-party websites or services, such as embedded videos or social media plugins. These third parties may collect information about you when you interact with their content. We are not responsible for the privacy practices of these third-party services.

 

Complaints and Inquiries

If you have any concerns about how we manage your personal information, you can:

We will investigate and respond to your complaint within 30 days. If you are not satisfied with our response, you can lodge a complaint with the Office of the Australian Information Commissioner (OAIC). Visit https://www.oaic.gov.au for more information.

 

Updates to This Policy

We may update this Privacy Policy from time to time to reflect changes in our practices or legal obligations. The updated policy will be posted on our websites with the effective date.

 

Contact Us For questions about this Privacy Policy, please contact:

Hydrocephalus Support Association (HSA)
Email: news@hydrocephalus.org.au
Website: https://hydrocephalus.org.au

 

This Privacy Policy is compliant with the Australian Privacy Principles and the Privacy Act 1988 (Cth).