Get Support

At the Hydrocephalus Support Association (HSA), we understand the challenges that come with living with or caring for someone with hydrocephalus. Whether you’re seeking information, emotional support, or connection with others who understand your journey, we’re here to help. Our resources, support groups, and community programs are designed to provide guidance, comfort, and empowerment to individuals and families navigating life with hydrocephalus.

Some sections below are for HSA Members only, so please log in to view all content. If you’re not yet a member, you can sign up here.

Member Support Menu

Connect With Welfare Officers

Our Welfare Officers are here to provide personalized support to individuals and families affected by hydrocephalus. Whether you need assistance navigating the healthcare system, accessing resources, or managing the emotional challenges of hydrocephalus, our Welfare Officers are available to listen, guide, and advocate on your behalf.

The contact information for our Welfare Officers can only be viewed by members who are logged in. Please log in or join to access this information. If you’re not yet a member, feel free to email us at info@hydrocephalus.org.au to get in touch.

Join Our Facebook Groups

Our private Facebook groups offer a safe and supportive space for individuals and families affected by hydrocephalus to connect, share experiences, and provide each other with encouragement. By joining these groups, you’ll be able to interact with others who truly understand the challenges you face, ask questions, and offer support.

Access External Resources

In addition to the support we provide, there are many external organizations and resources that can offer valuable information, guidance, and assistance for individuals and families affected by hydrocephalus. Our curated list of trusted external resources covers everything from medical advice to financial assistance and community programs.

If you are experiencing discrimination, you can make a complaint via the Australian Human Rights Commission: https://humanrights.gov.au/complaints. There are also State/Territory Human Rights Commissions that can provide more specific assistance. If you are experiencing discrimination, you shouldn’t be! Be sure to seek advice if needed.  Learn more here: https://www.fwc.gov.au/discrimination 

Request A Medic Alert Card

Medic Alert cards are available upon request to all HSA members. To request your card, please make sure you’re logged in as a member. If you’re not yet a member, you can join today, or contact us at info@hydrocephalus.org.au for more information.